Talking about sex and relationships is tricky for many people, but it can be especially tough if you have a life-limiting condition like Lucy.
She has a severe form of Ehlers-Danlos syndrome, which affects her collagen.
It has caused organs such as her gut to fail, so she is fed through a tube. She also uses a wheelchair.
“We are still young people with wants, needs, desires, emotions. We all want a relationship,” she tells Newsbeat at her home in Essex.
A new set of guidelines is being published on Tuesday for staff working with young people who have life-limiting or life-threatening conditions.
It aims to help professionals such as doctors and carers support people like Lucy when they are exploring sex and relationships.
One of the biggest myths according to Lucy…
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