It’s bad enough having such a debilitating illness, not just MND but Cancer or MS to name but a few, without having to worry about money. The future finances of people living with an any illness & relying on welfare is a very scary thought.
My husband’s body is slowly failing him. He has a rare progressive form of Motor Neurone Disease called Kennedy’s disease and has gone from being physically active to depending on crutches and a wheelchair to get around. At night he breathes with the help of a machine that supports his weakened chest muscles.
Few people have heard of Mark’s disease, let alone understand what it is like to live with it. We wanted to change that, so Mark and I decided to volunteer for the charity Motor Neurone Disease Association as campaigners. We raise awareness of the disease and try to create change at a local and national level.
In November last year Mark and I were asked to speak to the All Party Parliamentary Group (APPG) on Motor Neurone Disease, when the welfare reform and work bill was being debated. Like many others, we were…
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