Mark Neary’s recurring nightmare is that six months after his own death, son Steven who has autism and learning disabilities will end up in a residential unit similar to the one where he was detained in 2010.
Later that same year, a human rights court case ruled that Steven’s detention was unlawful. Nowadays he lives independently, with support painstakingly managed by dad, Mark.
It’s a tough thing to have to think about. Routine is vital for Steven, so Mark hopes that a comprehensive death plan document including everything from details on paying staff to instructions for making compilation tapes, will ensure Steven thrives after he’s gone.
With Emma Tracey.